Do you remember that movie Lorenzo's Oil?
It starred Susan Sarandon and Nick Nolte? It was about a kid "with a disease so rare that nobody is working on a cure, so his father decides to learn all about it and tackle the problem himself."
I'm sorry to say that the kid, Lorenzo Odone, died May 30, 2008 from complications of aspiration pneumonia. Lorenzo suffered from Adrenoleukodystrophy (ALD) the disease chronicled in the movie. He was 30.
1978 - 2008